Wednesday, February 20, 2013

Beating the storm

I have moved my radiation appointment for tomorrow to 8:00 A.M.  Hopefully we can miss the snow!  My driver was happy to take me at the early hour.  Everyone please keep your fingers crossed that I can get my treatment in before the storm!

If you follow B.V.U basketball then here is information for you.  The Thursday game has been moved to Friday and the Saturday game has been moved to Sunday afternoon.

Tuesday, February 19, 2013

Expect the unexpected

The strange and unexpected has just become expected now.  Yesterday I had quite a bit to ask the radiologist.  Last week something bit my toe in the night.  It itched/hurt so badly that I had to put my prescription numbing cream on it.  The nurse said that it didn't look infected, so I'm O.K. for now.  My tongue has felt like it was scalded, so I asked the doctor about my tongue.  He said that sometimes you can get a virus on your tongue like a canker sore.  

Today I met with the lymphedema specialist.  She gave me some exercises and told me things that I need to differently.  I just need to be cautious and conscious how I am using my right arm.
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People have asked me if chemo was worse or radiation.  I guess that with chemo there was some recovery time before the next treatment, but with radiation the tiredness is an accumulating affect.  The tiredness gets worse the farther into radiation I get.  I asked the radiation oncologist when I could expect to get my energy back.  He told me approximately 4 wks after radiation ends.  

Saturday, February 16, 2013

2/3 done with radiation!

This was quite a week.  The doctor was worried about my skin.  He prescribed me a special cream and it seemed to help almost instantly.  The doctor checked my skin the next day and couldn't believe how quickly it improved.

We have the new windows in our family room.  The windows make such a difference in the room.  (The windows in the family room are a long story and I could probably write a blog just about the adventures of the family room windows.  I'm sure most of you don't want to read a blog about windows.)

Radiation makes me very tired and taking Bennadryl doesn't help.  I feel like I will never get my energy back. (I know that eventually I will feel like myself again.)  I am now 2/3rds done with radiation!

Tuesday, February 12, 2013

Radiation update

Radiation and the simple act of driving back and forth to Sioux City every day has depleted my energy.  (I'm not doing the driving just the riding.  Even still, I just don't have energy.)  Life in the Harder house goes on...we have had a recent flat tire, stomach flu (Will is missing his concert tonight due to stomach flu and Ted had it over the weekend), Buena Vista University basketball, and impending window replacement to work into our busy schedule.  I get up early to help get the boys out the door in the morning, leave around 12:30 for radiation, and arrive back in Storm Lake in time to pick Will up from the after school program.  It is really quite an accomplishment for me to stay awake until 7:00 p.m. these days.  (Last night I was falling asleep on the sofa at 6:00 p.m.)

My rash recall seems to be running through all of the unpleasant rashes from chemo, but it is easing off. The only rash I can't control with Benadryl is the rash on my head.  It can be tolerated with hydrocortisone cream.  I've seen the radiation oncologist two days in a row for skin check.  My skin is getting very red and is developing a radiation rash.  I have special cream waiting for me at the pharmacy.  Tomorrow they will be setting up new coordinates for radiation treatment.  By changing the angles that they position the radiation, for  5 days, they can give my skin a break.

In good news, I am half way done with radiation!  I'm looking forward to Valentine's Day.  Since this has been such a difficult year I decided to help Will make special valentines for his class.  Will is excited!  We had one extra valentine, so Will said that he wanted me to put his name on it!  He wanted a special valentine too!